There truly are no words to describe our love for you. You amaze us as a family, how you have accepted our son with his Autism and now with his additional diagnosis of PANDAS D/O. To put it simply, Joshua had Scarlet Fever last year and then he ended up getting strep throat at the beginning of the school year. The “strep” never left his body and ended up going to his brain which has caused him to have difficulty functioning. He has been fearful, anxious and sad. He has had an increase in impulsive behaviors and irrational thinking. He has not wanted to leave my side. He has had thoughts that people are wanting to hurt him and kill him, which happened a few weeks ago at church. He has had hours of crying, screaming and asking me, “Mommy, what is happening to me?” Faith has been such an incredible little sister, yet it has been hard for her to see her big brother withdrawing from her. Joshua began treatments with preventative medication and just finished a week long intense treatment of steroids to which I took a leave from work to be home with him to monitor the treatments. We have spent many nights without sleep, feeling drained and yet God has worked through your cards, letters, text messages, meals, cleaning our home….you have touched our hearts. You truly are living the scripture when we are exhorted to “lift one another up”, to “encourage one another”. Thank you all for your love and support during this PANDAS D/O journey that has gripped Joshua’s life and us as a family. You ARE our Family, and we love you.If you would like to follow Joshua’s journey, you can at www.4jart.blogspot.com
Love,
Matt, Angel, Joshua & Faith
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